Showing results for "Rara" in Hygiene & Healthy Living

Fighting sarcoidosis as well as other rare diseases.

Rare Medium with Deb Snyder Celebrating life’s rarities, the people, places and experiences that just might be a little bit weird. This podcast explores all facets of our energetic connections…to each other and beyond We’ll dive into the depths of mediumship, psychic ability, intuition, near death experiences, afterlife research, healing modalities and more. Our focus is to bring you relevant and moving accounts with guests who share their authentic selves and their treks into Spiritual and energetic realms. We’ll learn how those experiences shifted their perspectives on life itself. ...

This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand.Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years.Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community.Thank you for listening and for being part of the Rare Aware journey. For more information, visit www.raredisorders.org.nz

Dobro došli na podcast! Ovo je naše: “Zašto Rare & Share?”: Tokom lečenja sina od retke bolesti, a posebno nakon izlečenja imali smo prilike da upoznamo sjajne ljude i čujemo vrlo inspirativne priče. Ceo jedan svet sa svojim temama. Ovde ćemo pričati sa onima koji su pokretali lavine događaja, menjali okvire, pomerali granice do tada poznatog. Želimo da razgovaramo o temama koje su važne onima koji se suočavaju sa retkim izazovima kao što su pravni i zakonski okviri, aspekat psihološke podrške, medicinska dostignuća i nove studije. Planiramo razgovarati sa ekspertima, ...

Rare Humans is a podcast about what it really looks like to live — and thrive — with a complex biology in today’s world. Hosted by Kevin and Jack, each episode explores chronic health, blood sugar, energy, mindset, and the daily realities of managing a body that doesn’t follow the “normal” playbook. Through honest conversations, personal stories, and practical insights, Rare Humans is here to help you feel more in control of your health — and remind you that being different might just be your greatest advantage.

Your Podcast for Rare Kidney Conversations Life with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their ...

Conversations started by The Whitworth Group

The Rare Rebels™ Podcast shares unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease. These aren’t polished soundbites — they’re real voices from the front lines, revealing the humanity, heartbreak, and hope woven into the rare disease experience.Because change doesn’t happen through statistics alone — it happens through connection.Hosted by award-winning storyteller and advocate Melody Joy Paine, Rare Rebels™ brings lived experiences to the forefront, bridging gaps between families, researchers, nonprofits, ...

Following up on the Rare Trials Summit, we present to you the Rare Trials Podcast. Our goal is to bring you PI and sponsor level information and support, backed by both experience and trends.

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them

Bienvenue dans “Le QG des Maladies Rares”, un podcast porté par l’association Margot pour la vie. Ici, nous donnons la parole à celles et ceux qui font vivre un projet profondément humain : un lieu d’accueil, d’écoute et d’accompagnement pour les enfants atteints de maladies rares et leurs familles. Guidé par la voix de Gilles Halais, journaliste et narrateur engagé, ce podcast vous plonge au cœur d’une aventure humaine faite d’émotions, de rencontres et d’espoir. Épisode après épisode, vous découvrirez les valeurs, les histoires et les énergies qui donnent vie ...

En este podcast entrevistamos a un genetista sobre una enfermedad rara particular, en la fecha en que se conmemora el día internacional o mundial de ese padecimiento, con solo 5 preguntas: ¿qué es? ¿cómo se diagnostica? ¿cómo se trata? ¿por qué conmemorarlo ese día? y ¿dónde buscar más información? Hosted on Acast. See acast.com/privacy for more information.

Thriving in the Rare is a podcast dedicated to amplifying the voices of individuals living with rare diseases and complex chronic conditions. Through candid conversations with patients, caregivers, and advocates, this series explores what it truly means to move forward in the face of uncertainty, loss, and change.Each episode highlights personal journeys of adaptation—navigating diagnosis, redefining identity, managing invisible symptoms, and finding new ways to live meaningful, connected lives. Guests share how they have transformed challenge into purpose through advocacy, creativity, ...

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The prognosis is completely unknown. They were alone. They were scared. And then they went into action. And now ...

The Medium Rare Podcast delves into the unseen layers of human connection through intuitive and psychic conversations. In each episode, host Dinny Carmen sits down with a guest she’s never met before, knowing only their name and favorite food. Using her psychic abilities as a guide, Dinny dives beneath the surface to uncover deeper truths, emotional insights, and surprising connections.The Medium Rare Podcast, where Spirit never pays for dinner. Hosted on Acast. See acast.com/privacy for more information.

Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it. Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope. This isn...

Hosted by HCPLive, the monthly series tackles the intricate details of the 6,000-plus known rare diseases, featuring an expert guest, one disease at a time.

🎙️ Dessine-moi un cœur – Podcast Le récit intime et courageux d’une battante face à un cancer rare. À travers ce podcast, je partage mon parcours contre une maladie peu connue : la maladie de Paget extra-mammaire secondaire. Quatre années d’errance médicale, de doutes, de douleurs, d’espoir et de combats. Ici, je mets des mots sur l’invisible. Je parle de la peur, de l’annonce, des traitements, de la vie de maman, de femme, et de l’impact d’un cancer rare sur le quotidien. Ce podcast est un espace de vérité, de vulnérabilité et de force. Un témoignage pour ...

Welcome to Pink Kink, where empowerment starts with education. Join Princess Rara and Electro_Khaleesi as they explore the world of kink with honesty, humor, and over 30 years of combined experience. From practical tips to thought-provoking conversations, you'll gain the knowledge and confidence to build the kinky life and relationships that are right for you.