Showing results for "Rara" in Children's Health

A New York Times Book Review Editors' Choice Kate Bowler's The Everything Happens Book Club Pick! Award-winning writer Heather Lanier's memoir about raising a child with a rare syndrome, defying the tyranny of normal, and embracing parenthood as a spiritual practice that breaks us open in the...

This new audiobook is third in a series of inspirational stories about fathers raising children with special needs. Rare Disease Stories from the SFN Dad to Dad Podcasts is a compilation of 12 stories told from the perspectives of fathers raising children with rare diseases. Each of the 12 chapters includes a heartfelt story by a father who has also agreed to serve as a Special Fathers Network (SFN) Mentor Father.

The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency. A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare...