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Unstoppable Strides: Navigating Runner's Dystonia

Unstoppable Strides: Navigating Runner's Dystonia

By: Julie Bergfeld
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Join Julie for information, exploration, stories of hope and real talk related to running with dystonia.

Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.

Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.

Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.

Give us a listen if you'd like to learn more.


One small favor... if you like these podcasts and want to support the show, could you buy us a cup of coffee through a donation to support our hosting and producing fees? https://www.buymeacoffee.com/dystonia


You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com

© 2026 Unstoppable Strides: Navigating Runner's Dystonia Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • Tim Koh Shares his story and Genetic Mutation

    Tim Koh Shares his story and Genetic Mutation
    Jul 8 2026

    Tim Koh, Professor of Kinesiology and Nutrition at the University of Illinois-Chicago, shares his story of dystonia and information about a possible link with a genetic mutation (THAP 1).

    Please share these podcasts with friends, supporters, healthcare providers, your team. Without your support, we could not exist. If you'd like to contribute to our keeping these going, please consider donating via the links here.

    Support the show

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
    Show More Show Less
    37 mins
  • Researcher Ariel Beccia Shares her Dystonia Story

    Researcher Ariel Beccia Shares her Dystonia Story
    May 29 2026

    Julie talks with Ariel Beccia, a researcher with the Harvard School of Public Health, on her dystonia story and how she got from not running 10 years ago to where she is now with running and racing and workouts.


    Please Like, Comment, Share!

    Support the show

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
    Show More Show Less
    42 mins
  • Exploring Oral Therapy with Dr. Bernard Ravina of Vima Therapeutics

    Exploring Oral Therapy with Dr. Bernard Ravina of Vima Therapeutics
    May 20 2026

    Julie sits down with Dr. Bernard Ravina, CEO and founder of Vima Therapeutics. His company is developing a drug that looks promising in helping those with dystonia.

    Vima Therapeutic website

    Vima Therapeutics team

    Site for current Phase 2 dystonia study into first oral medication. The study is named "Stride Dystonia"

    Survey done with the Dystonia Medical Research Foundation (DMRF).

    Support the show

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
    Show More Show Less
    37 mins
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