The Encephalitis Podcast Ep 60

This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect. Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and Health, the British Association of Brain Injury Case Managers, the Vocational Rehabilitation Association, and the British Psychological Society, where he also holds an associate fellowship.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis.

Here is a link to Wady's music https://youtu.be/btoaGoXLi1k

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

------------------------------------------------------------------------------------------------------------------------------

Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

Encephalitis Podcast Episode 58

In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions.

They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face.

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

------------------------------------------------------------------------------------------------------

Follow Encephalitis International:

📢 Facebook: https://www.facebook.com/EncephalitisInternational

📢 Instagram: https://www.instagram.com/encephalitisinternational

📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy.

Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment.

You can find out more about her work on her website - https://milkshakesformarleigh.org

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If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

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Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?'

Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International.

Her research focuses on clinical and genetic aspects of autoimmune encephalitis.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats

In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates.

Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis.

Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked in internationally renowned NHS services in the UK, that's National Health Services such as the Community Head Injury Service, Aylesbury and the Oliver Zangwill Centre, Cambridgeshire.

With an additional background in Chinese martial arts, Doctor Yeates applies these practises to address physical and psychological needs.

Currently, he partners with charities on web-based resources, chairs the Thames Valley UK acquired Brain Injury Form, and serves as an active academic at Oxford Brookes University's Centre of Movement, Occupational and Rehabilitation Services.

--------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.

Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?'

Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark.

He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of autoimmune encephalitis.

Professor Irani is one of the world's most experienced clinicians in this area and has published over 200 scientific papers about autoimmune neurological diseases.

He's also a member of Encephalitis International's Scientific Advisory Panel, providing expert professional guidance which informs our research strategy, information, resources and guidance.

Find out more about autoimmune encephalitis here - https://www.encephalitis.info/types-of-encephalitis/autoimmune-encephalitis/

------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational