Season 5 | Episode 1: Navigating the Healthcare System with HS
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Welcome back to Season 5 of The Hidradenitis SuppuraDivas! 💜
In this episode, Brin and Cyd dive into one of the most overwhelming parts of living with hidradenitis suppurativa (HS): navigating the healthcare system.
From building your medical team to maximizing those 7-minute dermatology appointments, this conversation is all about reclaiming your voice as a patient. If you've ever felt dismissed, rushed, unsure how to ask for what you need, or overwhelmed by insurance barriers — this episode is for you.
We talk about:
✨ Finding a dermatologist who truly sees and validates you
✨ Why it’s okay (and necessary) to switch providers
✨ How to prepare for appointments so you make the most of your time
✨ Prior authorizations and insurance hurdles
✨ Biologic access and pharmaceutical assistance programs
✨ The power of patient advocacy and storytelling
✨ Why your support group belongs on your medical team
The healthcare system may feel broken — but you are not powerless in it. Advocacy starts with preparation, confidence, and community.
If you’re navigating HS care right now, know this:
You deserve to feel heard.
You deserve proper treatment.
And you deserve a team that works for you.
🔗 Resources & Support
Find tools, prior authorization templates, advocacy resources, and community support at:
👉 HSConnect.org
Follow for education, updates, and community:
📲 Instagram: @hsconnectorg
📲 Instagram: @socialcydd
If this episode helped you, share it with another HS warrior. See you next episode 💜
This podcast was made possible by our sponsor Moonlake, and past sponsors UCB and Sanofi.