• 229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation
    Jun 16 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Naomi Aziz, patient advocacy and engagement lead at the Endometrial Cancer Research Foundation. June is Uterine Cancer Awareness Month, and endometrial cancer now ranks as the nation's most common gynecologic cancer.

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    22 mins
  • 229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation
    22 mins
  • 228: An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society
    Jun 9 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michelle Ng Gong, MD, president of the American Thoracic Society (ATS). Dr. Gong formally replaced Raed Dweik, MD, at the ATS 2026 conference in Orlando, Florida.

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    11 mins
  • 227: An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation
    May 31 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrew Wilson, MD, scientific director of the Alpha-1 Foundation, about the latest therapies to treat alpha-1 antitrypsin deficiency, an incurable genetic disease that causes both lung and liver damage.

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    8 mins
  • 226: An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program
    May 26 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Vallerie McLoughlin, MD, director of the Pulmonary Hypertension Program at the University of Michigan-Ann Arbor, about results of a phase 3 trial for ralinepag to treat pulmonary arterial hypertension.

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    9 mins
  • 225: An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator
    May 18 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Craig Martin, founder and CEO of the Orphan Therapeutics Accelerator (OTXL) — a nonprofit biotech dedicated to advancing shelved clinical-stage therapies for ultrarare diseases.

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    15 mins
  • 224: An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest
    May 14 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henriette Farkas, MD, PhD, director of the Hungarian Angioedema Reference Center in Budapest, and a world expert on the treatment of HAE.

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    13 mins
  • 223: An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease
    May 4 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antón Blatnik, PhD, who recently won a $150,000 grant from Cure SMA to study the molecular mechanisms that drive neuromuscular disease and gene expression.

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    11 mins