In this episode, I sit down with Riley’s family to talk about the uncertainty surrounding his muscular dystrophy diagnosis.

They share what led to genetic testing, what they learned from the results, and why doctors are still determining whether Riley’s condition is more consistent with Duchenne or Becker muscular dystrophy. We also discuss the emotions that come with waiting for answers, learning about genetics, watching for symptoms, and making decisions without having a completely clear diagnosis.

This conversation offers an honest look at the uncertainty some families face and the importance of support, education, and taking the journey one step at a time.

MD Warrior out.

In this episode, I sit down with Cerys Davage for an honest conversation about living with limb-girdle muscular dystrophy.

Cerys shares her journey from childhood and diagnosis into her teenage and adult years, including the physical and emotional challenges she has faced. We also discuss independence, relationships, confidence, content creation, disability representation, and the importance of sharing real experiences from within the muscular dystrophy community.

This conversation is about identity, resilience, and building a meaningful life while living with a progressive disability.

MD Warrior out.

In this episode, I sit down with Brandon for an honest conversation about living with spinal muscular atrophy Type 2, building a lasting marriage, and raising a family.

Brandon shares how he met his wife, the challenges and assumptions they have faced as an inter-abled couple, and what has helped their marriage remain strong for 21 years. We also discuss caregiving, communication, family support, parenting, and raising a daughter while living with a disability.

This conversation is about love, commitment, fatherhood, and proving that disability does not prevent someone from building a meaningful relationship and family.

MD Warrior out.

n this episode, I sit down with Lottie’s mother, Abby, for an honest conversation about raising a daughter with Down syndrome and MPS III Type A.

Abby shares Lottie’s journey, the process of receiving both diagnoses, and the challenges their family has faced along the way. We also discuss caregiving, medical uncertainty, advocacy, family life, and the importance of helping others understand Lottie beyond her diagnoses.

This conversation is about a mother’s love, resilience, and determination to give her daughter the fullest and most meaningful life possible.

MD Warrior out.

In this episode, I sit down with Sarah for an emotional conversation about how muscular dystrophy has affected two generations of her family.

Sarah shares what it was like growing up with a brother who lived with muscular dystrophy, the memories they created together, and how she later became one of his caregivers. Years later, her life changed again when her own son was diagnosed with muscular dystrophy.

We discuss the emotions of experiencing the condition first as a sister and now as a mother, along with caregiving, grief, family strength, and the uncertainty that comes with watching someone you love live with a progressive disability.

This conversation offers a powerful perspective from someone whose life has been shaped by muscular dystrophy through both her brother and her son.

MD Warrior out.

In this episode, I sit down with Brad Miller for an honest conversation about his journey living with Becker muscular dystrophy.

Brad shares his experiences growing up with the condition, the challenges he has faced, and how Becker muscular dystrophy has shaped his identity and outlook on life. We also discuss his journey as an author, the inspiration behind his book, and why sharing his story is important to him.

Brad also opens up about his future goals, the impact he hopes to make, and the importance of continuing to pursue purpose beyond a diagnosis.

This conversation is about disability, writing, resilience, personal growth, and building a meaningful future while living with Becker muscular dystrophy.

MD Warrior out.

In this episode, I open up about a difficult question: have my parents truly accepted my Duchenne muscular dystrophy diagnosis?

I reflect on how my diagnosis has affected my parents emotionally, the sacrifices they have made as my caregivers, and the uncertainty they continue to face as my condition progresses. I also discuss the difference between accepting a diagnosis and accepting everything that may come with it.

This is an honest conversation about parental love, fear, grief, caregiving, and how families learn to live with a diagnosis they never expected.

MD Warrior out.

In this episode, I open up about one of the most difficult thoughts I have faced while living with Duchenne muscular dystrophy: that my parents will never become grandparents.

I share the emotions that come with thinking about dating, relationships, having children, and the future I once imagined for myself and my family. I also reflect on the guilt, sadness, uncertainty, and pressure that can come with feeling like a diagnosis may affect not only your life, but the dreams of the people you love.

This is an honest and personal conversation about grief, family expectations, acceptance, and learning to live with a future that may look different from what I once hoped.

MD Warrior out.