In episode #167, Sanam Saeedi shares her perspective on living with MS, fatigue, walking and energy. Diagnosed in 2019, she explains how symptoms such as foot drop, balance issues and fatigue changed her daily life — and why pushing through is not always the best answer.

As a neurological movement and fatigue coach, Sanam focuses on awareness, pacing, stabilization, strengthening and tracking. Her message is practical and encouraging: MS requires strategy, not just motivation. By understanding patterns in sleep, stress, nutrition, energy and movement, people with MS can make small, sustainable changes that support confidence and quality of life.

Here you can find the complete shortened interview transcript.

• Sanam's diagnosis and personal journey with MS
• Why MS fatigue and movement are closely connected
• Foot drop, balance issues and gait changes
• Why compensation can increase fatigue
• Fatigue pacing and energy management
• Small everyday changes for more control
• Good days, bad days and symptom tracking
• Rebuilding body trust after setbacks
• Movement confidence and living well with MS

• Alan Kalron: movement, balance and training strategies in MS
• Anthony Feinstein: staying physical, social and cognitive active
• Isabel Voigt and MS360°: holistic, whole-person MS care
• More on ms-perspektive.de: fatigue management, pacing, gait, balance, foot drop, body trust and movement confidence

Sanam Saeedi: Trust the process.

I want people to believe that they can improve. It may not happen quickly. It may take time and consistency. But improvement is possible.

You do not have to do everything at once. Start where you are. Learn your patterns. Make small changes. Keep going.

Website: https://lalikhealthandwellness.coachesconsole.com/welcome-let-s-get-started-html
LinkedIn: Sanam Saeedi | LinkedIn
Instagram: Instagram
TikTok: @lalik_movement_coach
YouTube: (2) Lalik Neuro Coach – YouTube
Work email: s.saeedi@lalikhealthandwellness.com

See you soon and try to make the best out of your life,
Nele

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Click here for an overview of all podcast episodes published so far.

What are unseen MS symptoms really like? In this inspiring episode, Hjördís Ýrr Skúladóttir from Iceland shares her personal journey with multiple sclerosis, from diagnosis and burnout to becoming a patient advocate and former Chair of the Icelandic MS Society.

Together, we talk about invisible MS symptoms such as fatigue, bladder problems, and emotional exhaustion, while also exploring leadership, healthcare in Iceland, and the power of community support.

Hjördís explains how her background in education and policing shaped her resilience and communication skills, and why she believes openness and compassion are essential for living well with MS.

• Living with unseen MS symptoms
• MS fatigue and misconceptions
• Iceland's healthcare system
• The role of MS nurses
• Becoming a patient expert
• Leadership and advocacy
• Community support and empowerment
• Work-life balance with MS
• Hope for the future of MS care

• MS-Perspektive Podcast: https://ms-perspektive.com/166-hjoerdis
• Hjördis website
• on LinkedIn
• on Facebook
• on Instagram
• Iceland MS Society
• Icelandic MS Society
• Oceans of Hope

What does it really mean to live a meaningful life with multiple sclerosis?

In this episode, Patti Bevilacqua shares her deeply personal journey after being diagnosed with MS at just 22 years old. Instead of trying to "push through," she chose a different path—one shaped by self-awareness, resilience, and intentional living.

Today, Patti is a speaker and advocate for people with invisible challenges. In this conversation, she opens up about identity shifts, career changes, and why MS does not define who she is.

👉 Read the full blog article here:
https://ms-perspektive.com/165-patti

• Patti's MS diagnosis at age 22
• Early symptoms and first reactions
• Letting go of a dream career
• Living without disease-modifying therapies
• Navigating uncertainty in professional life
• Identity shifts and invisible challenges
• Becoming an advocate and public speaker
• Mindset, resilience, and purpose
• Why "MS doesn't define me"
• Living a meaningful life beyond diagnosis

• Patti Bevilacqua Website: https://patti-bevilacqua.com
• Newsletter: https://pattibevilacqua.substack.com
• LinkedIn: https://linkedin.com/in/patti-bevilacqua
• Instagram: https://instagram.com/fearlesswithms

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See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.