We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.

A big shout out to all of our supporters. We couldn't do all this without your help and support. xo

This episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages and now a LBD awareness documentary.

We share with you all what we have been involved in over the past year or so that many of you may not be aware of. We have been working with a film crew on a documentary about those with LBD and their caregivers. Since that the film is close to completion, we thought now is the perfect time to share more details with y'all.

Welcome this week, the producer and director of the documentary we have been working on titled Facing the Wind. -Tony Heriza and Diedre Fishel.
The four of us share more details about the film and what it was like to be a part of this project.

Please consider watching the documentary trailer ( link below) and clink on the donate button to help get the film completion over the finish line. No amount is too small.
Go to: Facingthewindfilm.com or click on link below.

https://facingthewindfilm.com/

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with Dr. Sara .
Just a reminder- we are not giving medical advice, merely sharing our experiences.

This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one you won't want to miss and hear.

Should you wish to bless us with your support you can go to:
Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Patron Shout Out

A very special shout out to Miriam and Matthew Geraci and Phyllis Banks for being super monthly patrons

• Bronze

Amy
Sarah Szypula
Matthew Szypula
Andrew Szypula
Polina Dineva
Ginger Gillmore
Tedd Winkler
Ryan Samuel
Gillian Thompson

• Silver Patrons

Bonnie Ziegler-Weber
Mark Youlden
Lisa DeRosa
Karen Klink
Rita McCord
Kathy Deschenaeau

• Gold Patrons

Sharon Welch
Nancy Guerro
Phyllis Banks
Cindy
Marcia Treffman
Jay MacLean
Sheila Furey
Chris Oaks
Lenny Asuncion
Pat Crawford
Belinda Ray
Cherie Lawrence
Linda Bolbecker
Daisy Best
Sara Langer
Larry Herig
Brian and Amy Dougherty Platinum Patrons

Darlene Passmore-Armstrong
Thomas Connelly
Pat Crawford
Tere Wisell
Robin Lavaron
Alisa Mahoney
Albert Ferraro and Family
Norma Loeb

Super Patrons. Miriam and Matthew Geraci

Go Fund Me Shout Outs

Lisa DeRoa
Laketta Mitchell
Lori Krag
Heather and Lewis Grossit
Geri Sera
Janeen Obis
Deb Summers
Wendy Cogan
Susan Lavoice
LJean Howell
Marcia Treffman
Tedde Hope Hamilton
Geri Sera
Melinda Farmer
Michaele Couch
Pia Bedard
Russell Lebovitz
Nancy Guerro
Taylor Swantek

Thank you for listening each week.
Join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

Just a reminder- we are not giving medical advice, merely sharing our experiences.

This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one you won't want to miss and hear.

Should you wish to bless us with your support you can go to:
Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Patron Shout Out

A very special shout out to Miriam and Matthew Geraci and Phyllis Banks for being super monthly patrons

• Bronze

Amy
Sarah Szypula
Matthew Szypula
Andrew Szypula
Polina Dineva
Ginger Gillmore
Tedd Winkler
Ryan Samuel
Gillian Thompson

• Silver Patrons

Bonnie Ziegler-Weber
Mark Youlden
Lisa DeRosa
Karen Klink
Rita McCord
Kathy Deschenaeau

• Gold Patrons

Sharon Welch
Nancy Guerro
Phyllis Banks
Cindy
Marcia Treffman
Jay MacLean
Sheila Furey
Chris Oaks
Lenny Asuncion
Pat Crawford
Belinda Ray
Cherie Lawrence
Linda Bolbecker
Daisy Best
Sara Langer
Larry Herig
Brian and Amy Dougherty Platinum Patrons

Darlene Passmore-Armstrong
Thomas Connelly
Pat Crawford
Tere Wisell
Robin Lavaron
Alisa Mahoney
Albert Ferraro and Family
Norma Loeb

Super Patrons. Miriam and Matthew Geraci

Go Fund Me Shout Outs

Lisa DeRoa
Laketta Mitchell
Lori Krag
Heather and Lewis Grossit
Geri Sera
Janeen Obis
Deb Summers
Wendy Cogan
Susan Lavoice
LJean Howell
Marcia Treffman
Tedde Hope Hamilton
Geri Sera
Melinda Farmer
Michaele Couch
Pia Bedard
Russell Lebovitz
Nancy Guerro
Taylor Swantek

Thank you for listening each week.
Join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

Welcome Back Podcaast Family!
This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

Hello Everyone! Thank you for your patience.

Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his wife Linda as she helped him describe his current symptoms.

Should you wish to bless us with your support you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show

This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages.

"I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, and devastating sleep disruptions—he still prioritized this difficult task. The contrast is striking: even as Curry struggles with Lewy's daily challenges, he's thinking ahead to ease his wife's future burden.
Should you wish to bless us with your support you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

Support the show