Drs. Jay Nair and Helen Milligan are both doctors of Physical Therapy at Thomas Jefferson University. They joined us on the podcast today to talk about the concept of a Central Neural Drive and how this impacts people with Down syndrome. They are conducting a study on this topic and are looking for participants. For more information on the study, contact Dana R. Johnsn at nairlab@jefferson.edu, 215-326-9153.

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

Tracy Pellegrino is a social worker and Program Coordinator for the SMILE Stella Tremonti DS Clinic with Advent Health in Orlando, Florida. She joined the podcast to talk about the often neglected topic of grief in caregivers of people with Down syndrome.

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

Dr. Sarah Mann joined the podcast along with 2 of her coaches (Coach Helen and Coach Hannah) to discuss their perspectives on scoliosis, hip issues, knee issues, and feet issues in Down syndrome.

Resources Suggested
NDSS CARE-DS (https://careds.org)

Adult Down Syndrome Center (https://adscresources.advocatehealth.com/)

Adult Healthcare Guidelines (https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/)

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.