Episodes

  • Its been a year lets update

    Its been a year lets update
    Jun 30 2025
    I am live with my fb and I am doing updates from surgeries to new therapy and we got to go to Boston

    Hosted on Acast. See acast.com/privacy for more information.
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    30 mins
  • All the bad things rolled in one episode for my 10th episode!

    All the bad things rolled in one episode for my 10th episode!
    Aug 28 2024
    So yea what's good without the bad?

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    19 mins
  • We get to go to Disney?? what??

    We get to go to Disney?? what??
    Aug 27 2024

    Talking about good things happening obviously :) I mean....vacation for a medical family?


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    Hosted on Acast. See acast.com/privacy for more information.
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    16 mins
  • We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF

    We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF
    Jun 30 2024
    On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist.

    Hosted on Acast. See acast.com/privacy for more information.
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    29 mins
  • DC Leukodystrophy Research Trip Update(UBTF)

    DC Leukodystrophy Research Trip Update(UBTF)
    Jun 27 2024
    During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the opportunity to visit family members, including his grandparents (nono and yaya) and aunt. We also enjoyed attending a lively Greek festival together, immersing ourselves in the cultural experience. The trip was rounded off with a pleasant brunch shared with our relatives, combining both the pursuit of medical insights and cherished family moments in our nation's capital.

    Hosted on Acast. See acast.com/privacy for more information.
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    30 mins
  • Sick Policies and what's coming up

    Sick Policies and what's coming up
    Jun 3 2024
    In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up

    Hosted on Acast. See acast.com/privacy for more information.
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    40 mins
  • A Little Life Update

    A Little Life Update
    May 26 2024
    In this episode we will give a little life update. Stay tuned for some news!

    Hosted on Acast. See acast.com/privacy for more information.
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    28 mins
  • Mental health along with diagnosis

    Mental health along with diagnosis
    May 17 2024
    On todays episode we dive into the mental health aspect behind a diagnosis

    Hosted on Acast. See acast.com/privacy for more information.
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    34 mins