In this captivating episode, I am delving into the inspiring world of adaptations that have helped me living with Motor Neurone Disease (MND)

Adaptations play a vital role in enhancing the quality of life living with MND. From assistive technologies to home modifications, these adaptations allow me to maintain a sense of independance and dignity.

Join me as I uncover my top 5 adaptations that have made a profound impact on me living with MND since my diagnosis.

Lets Connect - https://linktr.ee/diagnoseddad

Sock Aid - https://amzn.eu/d/bN2qsdY

Mouse - https://www.pretorianuk.com/optimax-joystick

Cutlery Set - https://amzn.eu/d/2dcMGFi

Hot Tap - https://www.quooker.co.uk/fusion-round-fusionround.html?finish=217

Wash Dry Toilet - https://www.geberit-aquaclean.com/products/geberit-aquaclean-mera/

In this episode, join me as I attend a meeting with The All Party Parliamentary Group at the Houses of Parliament as I share my personal journey with Motor Neurone Disease (MND) Recounting my triumphs, challenges, and moments of resilience in the face of adversity. Witness the power of storytelling as I try to shine a light on the realities of living with MND and advocate for greater awareness and support.

In today's episode, we're diving deep into the fascinating world of gut health and nutrition, and exploring why it's so important for our overall well-being. Join us as we unravel the mysteries of our gut and discover the incredible impact it has on our physical and mental health.

We'll be joined by leading expert Sinead O'Flynn from Health 4U who shares her knowledge and insights on the vital role that our gut plays in maintaining optimal health.

In this episode, we'll explore the connection between our gut and the rest of our body, including our immune system, brain, and even our mood. We'll learn about the trillions of beneficial bacteria that reside in our gut, known as the gut microbiota, and how they influence our digestion, nutrient absorption, and overall health, delving into the importance of nourishing our gut with a balanced and nutrient-rich diet. We'll uncover the dietary choices that can either support or harm our gut microbiota. But it's not just about what we eat! We explore other lifestyle factors that can influence our gut health, such as stress management, sleep, and physical activity.

So, get ready to tune in and discover the fascinating world of gut health and nutrition in this episode of "BEYOND MND"

Thank you for listening.

CONTACT SINEAD AT HEALTH 4U

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On this episode we speak to a fellow warrior Mark Williams and his wife Steph on how Mark integrates his fitness diet and exercise living with MND on a daily basis. We have a casual conversation about life living with this condition to hopefully help raise awareness and help those who need it. Like & Comment your thoughts or questions

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Thank you for listening.

James

Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/

MARK WILLIAMS - https://www.instagram.com/markwill_mndefiance/

Join me in this episode where I dive into my families journey renovating our home to adapt it for my current and future needs living with Motor Neurone Disease. I discuss the renovations and journey. The help available to me living with a disability in organising adaptive accommodation. The financial support available that I managed to get and didn't get, the adaptions that I had installed, and the adaptions that I have got pending installation when and if I need it. So grab your headphone and enjoy.

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Thank you for listening.

James

Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/

In this episode I meet two amazing people Sarita & Sarah who are caring for their husbands living with Motor Neurone Disease.

Caring for someone with MND can be emotionally and physically exhausting. As a caregiver, it's important to prioritize self-care and ask for help when needed. Simple acts of kindness, like cooking a meal or offering to run an errand, can make a big difference. MND affects speech, so communication can be challenging. Finding new ways to communicate and spending quality time with your loved one is crucial. Remember, you are not alone, and there are support groups available to help Like MND & BEYOND and the MNDA as mentioned and recommended in this episode.

Let's go beyond & explore this journey caring for someone with MND together.

Thank you for listening .

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Come with me as I source a new car for me and my family through the motability scheme.

Discussing costs involved utilising my disability allowance after being diagnosed with motor neurone disease.

So grab yourself a coffee, sit back and let's go Beyond MND.

Motability Operations

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Come with me as I share my experience in starting a Smart Trial for a drug to hopefully help with Motor Neuron Disease. I also highlight the Latest MND news on Interleukin 2. Feel free to as any questions.

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Thank you for listening.

James

Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/