We will kick off with the basics: what pica means, how to say it and why it can help to name what’s going on. Families often tell us they worry that when their relative transitions from the family home, their concerns about pica won’t be taken seriously or that other people will misunderstand the risks. So the panel talk about how recognising pica can support clearer planning, safer support and conversations with services.

Our panel of experts is:

Viv Cooper – family carer with lived experience of pica

Kate Sanger – family carer with lived experience of pica

Linda Hume – Registered Nurse for People with Learning Disabilities

Peter Baker – Senior Lecturer, Tizard Centre, University of Kent

Resources mentioned in this episode:

PICA Resource

Hosted on Acast. See acast.com/privacy for more information.

We welcome Claire Lightly from Bodysense Education for an open, honest and practical conversation about puberty and sexual expression.

We discuss real questions from the CBF Family Carer Email Network and explore some of the issues you might feel least able to talk about.

Content note: This episode discusses adult themes such as masturbation in an educational and supportive context.

Resources mentioned in this episode:

Addressing sexualised behaviours in schools and colleges

Addressing Sexualised Behaviour in SEND Schools and Colleges: A Dignif

Bodysense Education - where Claire works!

Home - Bodysense Education

Deluxe Condom Training model

Deluxe Condom Training Model, Beige | Health Edco Resources

Ejaculating dildos - this link takes you to an online sex shop

Ejaculating Dildos | Ultimate Sensual Experience | Lovehoney UK

Easy on the I

Image Bank - Learning Disability Service

Learn and thrive

Learn and Thrive | Charity | Educational Resources for Down's Syndrome

NSPCC Navigating puberty - lots of free widget symbols

Navigating puberty and sexual development | NSPCC Learning

Downs Syndrome Association

Relationships & Sex Education - Downs Syndrome Association

Supported Loving Toolkit

Choice Support | Supported Loving toolkit

Things Tom/Ellie likes

Things Tom Likes | Jessica Kingsley Publishers - UK

Things Ellie Likes | Jessica Kingsley Publishers - UK

Hosted on Acast. See acast.com/privacy for more information.

Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.

Tell us what you think and suggest ideas for future episodes here

Links to the documents mentioned in the episode:

Mental Capacity Act Code of Practice

Disabled Children: a legal handbook

Cerebra Accessing Public Services Toolkit

Luke Clements ‘resources’ page

Template letters Cerebra

National framework for NHS continuing healthcare and NHS-funded nursing care (2022)

Hosted on Acast. See acast.com/privacy for more information.

Our much anticipated episode featuring Luke Clements, Cerebra Professor of Law at Leeds University. Hugely knowledgeable, a member of the Challenging Behaviour Foundation's Legal Panel and champion for family carers everywhere. We discuss the law; how it should work, how it sometimes doesn't work and how it changes as your young person transitions to adulthood.

Tell us what you think and suggest ideas for future episodes here

Links to the documents mentioned in the episode:

Mental Capacity Act Code of Practice

Disabled Children: a legal handbook

Cerebra Accessing Public Services Toolkit

Luke Clements ‘resources’ page

Template letters Cerebra

National framework for NHS continuing healthcare and NHS-funded nursing care (2022)

Hosted on Acast. See acast.com/privacy for more information.

Our family carers continue their discussions diving deep into the complexities of navigating the system: deputyship, best interests, annual health checks, and the emotional realities of lifelong caring. If you've been wondering how to ensure your young person's rights are upheld, this episode is for you - jargon free explanations from those who are already living it.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

Deputyship Deputyship - Challenging Behaviour Foundation

Health Health - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

As the title suggests we know that when your young person is going through transition from children to adult services so much is different - plus how do you know what is possible if nobody tells you?!

In this episode real families discuss the importance of connecting with others locally and nationally. With some top tips on how to prepare your young person, their siblings and yourself for some potentially huge changes and how to bond with the people who may be caring for your teenager on a day to day basis if they are moving away from home for the first time.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Planning Your House Planning your house - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

Challenge Accepted Series 3 continues and we are talking about a biggie - housing! In this episode our family carers talk about how they secured a home for their relative and what they want you to know if you are on a similar journey. What's the HOLD scheme? How do you insist on the things you know are important, the non-negotiables? Whether you’re overwhelmed by choices or feel constrained by limited options listen in for real life, real people and real understanding.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Planning Your House Planning your house - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

Join Challenge Accepted' s third series as we take a look at the transition from children's services to adult services for young people with severe learning disabilities who may display behaviours described as challenging. This episode is a taste of what's to come and we hear from family carers who've been through transition. Where are their relatives now? How did they decide what was best for them? Words of wisdom, witty observations and a whole lot of understanding from those who get it....

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.