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CAH PULSE

CAH PULSE

By: CARES Foundation
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CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community. *This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*Copyright 2023 All rights reserved. Economics Hygiene & Healthy Living Management Management & Leadership Physical Illness & Disease Science
Episodes
  • Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big
    May 20 2026

    Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal crises; which did not stop her from playing sports or having plenty of fun. However, in hindsight, it did change her in a most positive way. In this inspiring and animated conversation, Dina and Stephanie uncover how Julia’s experiences have shaped her into a humble CAH patient, fierce advocate and ambitious entrepreneur.

    Julia opens up about the lessons she has learned, what has driven her to start her own company and why community, self-advocacy, and resilience matter so much. Honest, playful and emotional, this episode gives us a powerful reminder that it’s possible to turn challenges into purpose.

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    34 mins
  • Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey
    Apr 7 2026

    In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home birth turned into a whirlwind of uncertainty, medical urgency, and a near death experience for her newborn.

    From frustrating medical guidance and the uncertainty of not knowing the sex of her baby to the emotional highs and lows and finding the right support, Becky’s story highlights the importance of community, and trusting your gut as a mother.

    Join Stephanie and Dina for this heartfelt conversation which will serve as an inspiring reminder of a mother’s intuition, the importance of finding a center of excellence, and the resilience families ultimately discover when faced with the unexpected.

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    35 mins
  • Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar
    Mar 14 2026

    When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigating a condition she had never heard of.

    In this episode of CAH Pulse, Stephanie and Dina learn about Lupe’s emotional early days of Christina’s diagnosis, the powerful reassurance from doctors that set the tone for her life, and how her family learned to manage life with CAH. Today, Christina is a thriving, softball-loving three-year-old with a big personality—and even a viral TikTok video!

    Lupe’s story is about resilience, family, and raising a child who proves that kids with CAH can live full, beautiful lives.

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    30 mins
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