What if the most intense pain you’ve ever felt came from a part of your body that no longer exists?

As an above-knee amputee, phantom pain is one of the most difficult parts of my journey to explain. It’s invisible. It’s unpredictable. And unless you’ve experienced it yourself, it’s almost impossible to fully understand. Yet for many amputees, it becomes a reality we learn to navigate every day.

On this episode of the BAWarrior Podcast, I pull back the curtain on phantom pain and share my personal experience living with it over the last several years. From the constant burning and tingling sensations that feel like a foot trapped in a vice grip, to the sudden stabbing pains that can stop me in my tracks, phantom pain has taught me more about resilience than I ever expected.

I talk openly about what these sensations feel like, how they can affect daily life, and the emotional toll they can take when they strike unexpectedly. I also share my experience undergoing a revision surgery and AMI procedure at Massachusetts General Hospital, where surgeons discovered a foreign object near my femur that had been contributing to years of severe pain.

While there is no universal solution for phantom pain, I’ve learned that understanding potential triggers can make a difference. Poor socket fit, overuse, nerve irritation, stress, and even life circumstances can all influence how our bodies respond. Through years of trial and error, I’ve discovered that managing phantom pain often requires a combination of strategies rather than a single fix.

Most importantly, I share the mindset tools that have helped me endure some of my hardest moments. Deep breathing, movement, distraction techniques, mindfulness, and refusing to give pain control over my identity have become powerful parts of my personal toolbox. While pain may be part of my story, it does not get to write the ending.

If you’re an amputee struggling with phantom pain, I want you to know something I wish someone had told me during my darkest moments: it will not last forever. The pain comes and goes. The valleys are real, but so are the mountaintops. You are stronger than you realize, and you do not have to walk this journey alone.

I believe healing is about more than physical recovery. It’s about learning how to keep moving forward, even when the road feels impossible.

If this story resonates with you, I invite you to become part of our growing Warrior community. Subscribe to the BAWarrior Podcast, connect with us through Warrior Ground, join our conversations, and discover the strength that comes from walking alongside others who truly understand the journey.

Together, we heal. Together, we grow. Together, we rise.

Because being a warrior isn’t about never feeling pain—it’s about refusing to let pain define who you are.

You are strong, dear Warrior, and you are worthy.

Have a blessed week, and as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

What if the thing holding you back isn’t the possibility of falling, but the fear of what happens if you do?

As amputees, we talk a lot about mobility, prosthetics, and recovery. But there is one challenge that often doesn’t get enough attention: the fear of falling.

In this week’s episode of BAWarrior Podcast, I share my own experiences as an above-knee amputee and explore how fear can quietly limit our lives if we allow it to take control.

The truth is, for many of us, the fear of falling isn’t really about the fall itself. It’s about everything we think might happen afterward. We worry about losing confidence, losing independence, or proving our fears right. We wonder what other people will think if we stumble. We question whether we’re strong enough to keep going.

I’ve been an amputee for more than seven years, and I have fallen while learning new skills, while using my running blade, and while pushing myself beyond my comfort zone. Even today, there are moments when fear tries to creep in and convince me to play it safe.

But I’ve learned something important: the more we avoid challenges because we’re afraid of falling, the smaller our world becomes.

Fear doesn’t just stop us from taking a step. It can stop us from living.

Throughout this episode, I share how I learned to trust my prosthesis, build confidence through repetition, and move beyond the fear that so many new amputees experience. I discuss the importance of physical therapy, consistent practice, and creating safe opportunities to challenge yourself little by little. Confidence isn’t built overnight. It comes from showing up every day, taking one more step, and proving to yourself that you can do hard things.

One of the greatest lessons I’ve learned is that the best parts of life often exist on the other side of fear. Whether it was learning to run, trying adaptive sports, surfing for the first time, or simply trusting my body again after amputation, every meaningful milestone required me to face uncertainty and keep moving forward anyway.

If you’re struggling with fear—whether it’s fear of falling, fear of failure, fear of judgment, or fear of the unknown—I want you to know you’re not alone. Every amputee faces these challenges in some form. The key is not waiting until fear disappears. The key is taking action despite it.

This week’s Warrior Challenge is simple:

What fear is holding you back right now?

Identify it. Acknowledge it. Then take one small step toward facing it this week.

Remember, courage isn’t the absence of fear. It’s moving forward in spite of it.

You are stronger than you realize. Don’t stop before you give yourself the chance to prove it.

Keep moving forward, warriors.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

What if joining the movement means becoming part of the future of amputee care?

In this episode of the BAWarrior Podcast, I had the honor of sitting down with Jake and Hiva, two PhD students from the University of Michigan, who are working on research that could help shape the future of prosthetic technology for above-knee amputees.

This conversation was personal for me because I know what it feels like to step into the unknown for the sake of healing, hope, and future possibilities. Last year, I chose to take part in an experimental surgical procedure, and I know the questions, fears, and emotions that come with making that kind of decision. It is not easy to say yes to something new, especially when it involves your body, your mobility, and your future.

Jake and Hiva are currently working with RPNI, which stands for Regenerative Peripheral Nerve Interface. In simple terms, this procedure helps give nerves a new place to grow by wrapping them in small muscle grafts. These “muscle burritos,” as Jake described them, may help researchers better understand movement intention and even explore how a person could one day control a powered prosthetic knee or ankle more naturally.

What excites me most is that this research is not only about technology. It is about trust. It is about sensation. It is about helping amputees feel more connected to the ground beneath them and the prosthesis they rely on every day. As amputees, we know the physical work it takes to walk again, but many people do not see the mental load that comes with every single step. Research like this could help reduce that disconnect and move us closer to more natural, confident movement.

This study is currently looking for above-knee amputees who are comfortable using their prosthesis, able to navigate daily life without a wheelchair, and willing to be part of something bigger. Travel, lodging, and food are covered for participants who qualify. The study does involve surgery, so it is not a decision to take lightly, but it may be an opportunity for someone who is already dealing with nerve pain, neuromas, or who feels called to help move the prosthetic field forward.

Research does not move forward without us. Every advancement we see in prosthetics today happened because someone before us said yes.

So here is my call to action: Join the Movement. Do not just listen to the conversation; become part of the change. Visit WarriorGround to learn how you can get involved, support amputee research, become an ambassador for Limbs for Humanity, connect with Stride Robotics, or explore opportunities like this University of Michigan study.

You can also email Jake at: jkanetis@umich.edu

or email Hiva at: razavih@umich.edu

Let’s rise up, warriors. Our stories, our bodies, and our willingness to step forward can help build a better future for amputees to come.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

Click the link below to see the flyer for the University of Michigan study:

LL RPNI Flyer (1) 2