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Between Breaths Pediatric Lung Transplant: Before & Beyond

Between Breaths Pediatric Lung Transplant: Before & Beyond

By: Courtney
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About this listen

Between Breaths is a podcast created by a transplant mom who lived pediatric lung transplant with her son, Ryder.

This space is for families navigating life before transplant, during the hospital journey, and beyond, including the grief that often walks alongside it.

When you’re in this world, Googling at 2 a.m. leads to fear. Clinical answers don’t always give you the real-life experience you’re searching for.
Between Breaths fills the space between medical information and lived reality .... through honest conversations, shared stories, and community.

You’ll hear from transplant parents, caregivers, medical professionals, and families who understand this journey, along with reflections for those waiting, healing, surviving, or grieving.

This is not medical advice.
It’s support.
It’s shared experience.
It’s a place to feel less alone.

If you’re waiting, post-transplant, or carrying the loss of a child or friend along the way, you belong here.

© 2026 Between Breaths Pediatric Lung Transplant: Before & Beyond Hygiene & Healthy Living Physical Illness & Disease Social Sciences
Episodes
  • The Day the Air Changed

    The Day the Air Changed
    Feb 18 2026

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    "I’m not leaving this hospital without the same kid I came in with."

    In this episode, Courtney takes us back to the "shatter point". The day a routine hospital stay for RSV turned into a race for Ryder’s life. From the silent shock of sitting on a cold hospital floor to the experimental "last chance" treatment that required a 24-hour human watcher, this is the raw history of Ryder’s journey.

    Courtney discusses the terrifying sounds of the PICU that still trigger medical PTSD years later and the moment they realized "managing" Ryder’s rare lung disease (PIBO) was no longer enough. If you’ve ever sat in a hospital chair and listened to the alarms, this episode is a reminder that you are seen, you are heard, and you are not alone.

    In this episode, we discuss:

    • The moment "fine" turned into intubation
    • The reality of medical trauma and PICU soundscapes.
    • The experimental Sevoflurane treatment and the "miracle kick."
    • Living with PIBO: The "cocktail straw" reality of breathing.
    • The heart-wrenching decision to move toward a lung transplant.

    Between Breaths is a space for families walking through pediatric lung transplant. The fear, the strength, the grief, and the miracles.

    This podcast shares personal experience and is not intended as medical advice.

    If you found comfort here, follow the show and share it with someone who might need to hear it at 2am.

    We’re in this together.
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    10 mins
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