The podcast episode, hosted by Dr. Kim Ozano and co-hosted by Professor Sophie Witter, engages in an insightful discussion on health systems resilience, particularly in fragile settings affected by violence, conflict, pandemics, and other shocks. This conversation is part of a mini-series titled 'Stories of Resilience - Local Lives and Health Systems', powered by the ReBUILD for Resilience research consortium.

The episode features insights from Dr. Sushil Baral of HERD International and Dr. Seye Abimbola from the University of Sydney, who share their experiences and reflections on building resilience in health systems. The discussion navigates the complexities of resilience as a concept, emphasising the importance of community engagement, co-creation, and adopting a learning approach to health systems strengthening. The panel explores the balance between self-reliance and demanding accountability from government systems, addressing the power dynamics and the necessity of a fair distribution of responsibilities across levels of governance.

In this episode:

Dr. Sophie Witter - Professor of International Health Financing and Health Systems, Institute of Global Health and Development, Queen Margaret University, Edinburgh

Sophie has worked in health and development for the past 35 years, starting with development roles at Save the Children and moving on to academia. Much of her work has focused on reducing financial barriers to accessing health care – how can people get the essential care they need without having to make terrible sacrifices? – but she has also worked on many other important health system topics, such as incentivising health care workers and health system strengthening more generally. All of her research is oriented towards implementation – how to make systems work better for people, especially those who are most disadvantaged.

Dr Sushil Baral - Managing Director, HERD International

Dr. Baral, hailing from a remote hill district in Nepal, brings over two decades of experience in health systems, public health policy, and implementation research, with a particular focus on South Asia. His contributions have significantly impacted national and global health systems, policies, and public health agendas. He emphasises evidence-based practices tailored to local contexts, reflecting a dedication to global health research excellence. Dr. Baral's academic journey highlights innovative problem-solving and substantial contributions to health systems, policies, and disaster response in fragile and shock-prone settings in LMICs.

Dr Seye Abimbola - Associate Professor of Health Systems, University of Sydney, Australia

Seye Abimbola is a health systems researcher from Nigeria, where he has worked at the National Primary Health Care Development Agency on initiatives to strengthen the Primary Health Care system across the country so that it can deliver integrated health services to communities. Seye has also been involved in research on how decentralisation affects health system performance and how community health committees influence and support health services in their own communities. Seye is currently based at the University of Sydney in Australia, where his teaching and research focus on knowledge practices in global health, health system governance, and the adoption and scale-up of health system innovations.

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Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide-ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all

Welcome to another episode of the Connecting Citizens to Science podcast, where we explore the dynamic role of public involvement in advancing health research. In this episode, hosted by Dr. Kim Ozano, we delve into the impactful world of Patient and Public Involvement (PPI) with insights from the PPI Summer School at the University of Limerick.

Episode Guests:

Dr. Jon Salsberg - Senior Lecturer in Primary Healthcare Research, University of Limerick

A dedicated public health researcher, Dr. Salsberg has an academic background in health promotion and development anthropology. His research primarily explores the dynamics of research partnerships and the transition of research leadership from academic institutions to community stakeholders.

Over his career, Dr. Salsberg has been involved in collaborative research with a diverse array of stakeholders, including patients, health practitioners, community organisations, policymakers, and health service decision-makers. His extensive work with indigenous communities includes his significant involvement in the Kahnawake Schools Diabetes Prevention Project, which is detailed here.

In this episode, Jon discusses the evolution and impact of the PPI IGNITE Network.

Lora Ruth Wogu - Founder and CEO of Sickle Cell and Thalassemia Ireland

Lora Ruth Wogu is an Allied Health Professional and a passionate advocate for diversity, equity, and inclusion in healthcare, focusing on quality patient care for migrants and individuals with disabilities. As the founder and CEO of Sickle Cell and Thalassemia Ireland, she champions initiatives to educate and improve care for those affected by these conditions. Lora also leads the Migrant Health Alliance, aiming to enhance research participation and address barriers faced by migrant communities in healthcare settings. Her work is driven by a commitment to ensuring compassionate, competent, and inclusive healthcare for all, making her a respected voice in health advocacy and policy discussions.

Lora shares her experiences with engaging migrant communities in health research.

Alison Johnson - keynote speaker PPI Summer School 2023

Alison is a passionate advocate for patient, public, and carer involvement in healthcare, focusing on serious medical conditions. Her work in PPI began as a research participant, evolving into roles as a collaborator, where she champions the inclusion of patient and carer voices in health research. A lifelong learner, Alison's voluntary efforts extend to mentoring researchers and advising on best practices for effective patient engagement.

In This Episode:

Introduction to PPI and its Significance

Dr. Kim Ozano introduces the concept of patient and public involvement and its critical role in shaping health research.

Deep Dive with Dr. Jon Salsberg

Learn about the establishment and achievements of the PPI IGNITE Network, its goals for institutional change, and how it's transforming health research culture in Ireland.

Community Engagement Insights from Lora Ruth Wogu

Discussion on the challenges and strategies for involving diverse communities, especially migrants, in health research to ensure their voices are heard and represented.

Experiences from the Field with Alison Johnson

Alison shares her personal experiences and the importance of having meaningful contributions from public collaborators in research projects.

Email us at hello@thesclagency.co.uk for more information or to share your thoughts.

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In this episode, we discuss meaningful participation and inclusion when working with marginalised communities. We draw on research approaches from the Reducing the Burden of Severe Stigmatising Skin Diseases (REDRESS) research programme that aims to reduce illness, stigma, social exclusion, and poverty caused by severe stigmatising skin diseases (SSSDs) in Liberia. Since 2019 REDRESS has been co-developing new knowledge together with researchers, patients and programme implementers that directly respond to priority health needs detailed in the country’s ‘Investment Plan for Building a Resilient Health System’.

Hannah Berrian who is a Research Fellow for the Patient Engagement and Person-Centred Approaches thematic area for REDRESS and Shahreen Chowdhury, a researcher and PhD student at the Liverpool School of Tropical Medicine join us in a discussion about participation and inclusion and how these impact the partnerships and power dynamics that exist when trying to improve the health and wellbeing of marginalised people.

Episode guests:

Miss Hannah Berrian - Research Fellow, UL-PIRE Africa Center

Hannah Berrian obtained a Master’s degree in Public Health (MPH) from Cuttington Graduate School of Professional Studies in Liberia. She served as Liberia’s Mental Health Research Capacity Building Coordinator for Youth FORWARD, the U.S.-National Institute of Mental Health (NIMH) funded project from a collaboration between the Boston College of Social Work in Massachusetts, U.S., College of Medicine of the Allied Health Sciences (CoMAS) of the University of Sierra Leone, and UL-PIRE Africa Center at the University of Liberia, respectively.

She has several years of professional experience in project management, qualitative and quantitative research, programme implementation, qualitative data analysis, and building capacity for mental health research, among others. Hannah is a Research Fellow for the Patient Engagement and Person-Centred Approaches thematic area on Health Systems Strengthening for Reducing the Burden of Severe Stigmatizing Skin Diseases (REDRESS) consortium.

Ms Shahreen Chowdhury - Research Assistant, Liverpool School of Tropical Medicine

Shahreen Chowdhury is a social scientist, with a background in public health and geography. She currently works as a research assistant and PhD student at the Liverpool School of Tropical Medicine. She obtained her Masters in Public Health in International Development at the University of Sheffield and has varied local and international NGO experience in diverse settings on community health programmes.

Shahreen is particularly interested in the links between equity, mental health and disability inclusion, and community based participatory research. Her PhD explores mainstreaming the rights of people with psychosocial disabilities in Bangladesh, Liberia and Lebanon. In her current work, Shahreen is passionate about using creative participatory methods to amplify the voices and experiences of vulnerable groups affected by chronic illness and disability. Shahreen has extensive experience in working with co-researchers using photovoice, storytelling and art based participatory methods. Shahreen works in Neglected Tropical Disease programmes in West Africa and South Asia with a focus on co-production, designing, implementing and evaluating case detection and community based psychosocial support systems.

Useful links:

• DOWNLOAD A TOOLKIT FOR PARTICIPATORY HEALTH RESEARCH METHODS - Download and access a toolkit of PHR paradigms, methodologies and methods that can be selected and applied by researchers aiming to maximise inclusion, participation, and the achievement of more equitable research partnerships.