Jeff Jenkin and Sarah Rigg are a young couple with small sons.

Jeff was diagnosed with Bulbar and Upper limb MND in August of 2024.

3 months after he qualified as a Pediatric surgeon.

This heartfelt interview with Sarah Rigg and Jeff Jenkins explores living with MND, diagnosis journey, advocacy efforts, and maintaining hope and humour amidst adversity.

Gary Suntup is a deep thinker, he is a psychologist he shares his personal journey of losing hobbies and passions due to health issues, exploring how this impacts identity and self-understanding.

He also discusses his practice of radical acceptance.

Joseph Skewes and Bec Francis are the co-founders of Curalysis, a lived-experience-led digital health platform being built by people living with neurological conditions.. Joseph lives with MND, and Bec lives with refractory epilepsy.

Curalysis is built around a simple belief: people living with complex neurological conditions are already generating valuable day-to-day health data, but too much of it is fragmented, unstructured, or lost. The platform helps people track symptoms, function, interventions, and changes over time, with the aim of identifying patterns, improving personal insights, and building richer data to support better care, treatment, and research.

Joseph and Bec are currently fundraising to support the next stage of development, including ethics, compliance, and clinical trial preparation. They are also seeking a research collaborator institution to explore how Compass can support people with MND by improving the sequencing and personalisation of information and care navigation.

For more context, you can read about the Compass prototype here:
https://curalysis.com/blog/theres-no-map-for-this

You can also support or share the Curalysis GoFundMe campaign here:
https://www.gofundme.com/f/two-founders-two-diagnoses-one-platform-help-us-prove-it