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Let's Talk MND

Let's Talk MND

By: Jane Simpson
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🎙️ Let's Talk MND Hosted by Jane Simpson | #EndMND 💙 Hosted by Jane Simpson, whose late husband Robert fought MND for 10 months, Let's Talk MND shares the real stories of those affected by Motor Neurone Disease. Through heartfelt conversations with people living with MND, their families, carers, and leading experts, the podcast brings together a community of strength, understanding, and hope — proving that even in the darkest times, love and courage shine through.

2026 Jane Simpson Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • Let's Talk MND - Making MND a Notifiable Disease

    Let's Talk MND - Making MND a Notifiable Disease
    Oct 29 2026

    summary


    Let's Talk MD host Jane speaks with fellow MND advocates Anna- Louise Hobden, who helped make MND notifiable in New South Wales, and Jane Andrews of Damien's Journey and Fight with MND in Queensland. They explain why compulsory case reporting could give researchers and health services a clearer picture of MND, describe state-by-state advocacy, and call for Queenslanders to support a petition for change.
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    52 mins
  • Let's Talk MND - Peta Hardy, OT

    Let's Talk MND - Peta Hardy, OT
    Oct 12 2026

    In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND.

    She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
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    41 mins
  • Let's Talk MND - Dr Amanda Wright & Dr Lyndal Henden

    Let's Talk MND - Dr Amanda Wright & Dr Lyndal Henden
    Sep 27 2026

    In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world!

    We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare.

    They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
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    50 mins
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It’s been really great to hear about MND. The chat seems honest and open which is what’s needed.

MND. Mind blown

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