PK very good thanks

Good pod cast. covered a wide range of topic ŵell presented an informative range of topic

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SUCH a good podcast

I have listened to every episode of this most fantastic podcast and have told many friends, both, who have and also those who do not have PD. The weekly programmes are, I think, an absolute MUST for everyone, particularly the ‘older’ generation so that we can all have an insight into this horrid ‘condition’. Thank you all of you for your wonderfully open discussion, your thoughts, your advice, your own stories and also for getting together every week to put this podcast together. I do not have PD and am now so much more aware the many different aspects of it. Thank you. Hilly Ward

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Great insights into DBS with leading neurosurgeon

As usual, well formatted easy to listen to podcast. Certainly should not be missed.

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Comforting

Makes you feel less alone with this horrible condition. Thank you for making these podcasts and hope you will continue!

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Thank you

I am 4 years since diagnosis ,living in France 35 years . I cannot fault my care or treatment here, but, I do miss being able to "chat" in my natural first language.
I wish you all a Happ

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Fantastic.

Great panel and podcast idea. Humour, occasional belligerence, honesty and insight. Neurologists will likely prescribe it next in the letter when they inevitably cancel our next appointment. Pah.

Brilliant to hear all the different experiences - we'd never heard of the brain implant. Particularly liked Mark's openness when interviewed on R4 trailer interview about how he felt his voice now made him sound "querulous and a bit pathetic". Dad used to be a choral and opera singer/conductor and his speaking voice is now tremulous at times but he can still sing at his almost former best. Cruel disease when you're aware of it reducing you.

My Dad has Progressive Supranuclear Palsy (PSP) - very similar to Parkinson's but with a tendency to fall backwards rather than forwards. (As a result, I walk behind him with due deference rather than walking backwards in front of him ;-) Small mercies.

Thanks again - it cheered us both up. Dad's now re-listening as he forgot most of it (!) but when I asked for his assessment he smiled and said "brilliant". What more could a podcast hope to achieve?

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enlightening support. I can't wait for the next 1

thankyou movers and shakers. I will be sharing thus with my mother in law and her carer, my 86yr old father in law. they both have a wicked sense of humour, and I hope this weekly podcast brings them a ray of sunshine and enlightenment

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Very welcome, interesting and informative Podcast

In a nutshell this is excellent podcast from a bunch of reprobates talking about Parkinsons disease and the subtext is to de-grimify the condition. Thoroughly recommended for Parkinsons patients and their families.

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Best episode yet

I found this episode interesting, informative and helpful. it gave me hope Thank-you. As a fairly new PD sufferer this podcast is one of the most helpful things I have found.

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Younger people with Parkinsons and women

In each episode there is always a useful nugget of information.
During the young onset episode, the lady said it was a different condition for those diagnosed under 50. The international standard calls it early onset to distinguish the from the age related Parkinson’s. Although this suggests 50 as a baseline, it recognises that people could have had the disease for 5, 10, 15 or even 20 years. In my case my level of physical activity (exercise) masked my symptoms.
As a 55 year old who is still very active, I feel left out in the cold. Having to work and not being close to retirement makes it really difficult to manage drug regimes and exercise.
I’d love you to shine a light on younger women it’s Parkinson’s. Those who are still menstruating, are pregnant or going through the menopause. Why are more women diagnosed in their 40s and 50s as their hormones start to dry up?

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