In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their moving and honest conversation with Emma Pilling, whose son Charlie was diagnosed with hydrocephalus and an acquired brain injury as a baby. Now an advocate and fundraiser, Emma shares how diagnosis is only the beginning of a long journey, one shaped by learning, grief, advocacy and extraordinary resilience.

Emma opens up about finding support through the Child Brain Injury Trust, building community through her blog, and the practical changes that make everyday life more accessible. She reflects on the emotional weight of parenting a child with complex needs, and the importance of acceptance, friendship and fighting for the support your child deserves.

They explore:

• What real support from charities and professionals can look like
• How to advocate for your child in education, healthcare and public spaces
• The impact of invisible disability and why awareness still matters
• Parenting without comparisons — letting go of milestones and expectations
• Finding strength in shared experience and helping others through it
• Why peace comes not from giving up, but from being supported to carry on

Whether you are a parent, a professional or simply someone seeking a better understanding of life after childhood brain injury, this episode offers honesty, compassion and the belief that every child deserves more than just a life; they deserve a full one.

Helpful links:

• Emma's Blog
• Child Brain Injury Trust
• Shine Charity
• Harry’s Hydrocephalus Awareness Trust

For a transcript, follow the link below:

• Episode Transcript

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Community Compass app!

Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.

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Notice:

Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath speak with Emma Pilling, a parent navigating the emotional and practical realities of raising a child with an acquired brain injury. Emma shares the story of her son Charlie, who developed hydrocephalus as a baby, and reflects on the impact this had on her family, career and identity.

From the moment of diagnosis to advocating for her son’s education and wellbeing, Emma offers an unflinchingly honest account of the gaps in support, the grief of changed expectations, and the strength it takes to keep going. Now working for the Child Brain Injury Trust, she brings both lived and professional insight into how families can be better supported.

They explore:

• What hydrocephalus is and how it can affect the developing brain
• The emotional impact of a sudden diagnosis and medical trauma
• Parenting through grief, guilt and uncertainty
• Being dismissed by professionals and fighting to be heard
• The importance of early intervention and trusting your instincts
• Finding support, connection and purpose through lived experience

Whether you are a parent, professional or someone living with the effects of brain injury, this episode offers deep empathy, practical wisdom and a call to treat families with the compassion and clarity they deserve.

For a transcript, follow the link below:

• Episode Transcript

To keep up to date with our podcast, follow us on our social media accounts:

• Twitter
• Facebook
• Instagram

Community Compass app!

Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.

• Google Play
• Apple App Store

Notice:

Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their conversation with specialist dietitian Tony Ward, unpacking the myths, fads and emotional factors that influence how people eat after a brain injury.

They explore how food advice online can be confusing or even harmful, and why evidence-based guidance is crucial, especially when nutrition affects mood, memory, energy, and independence. Tony offers a practical, compassionate view of food as both fuel and comfort, and shares how personalised support can help people feel empowered, not restricted.

They explore:

• Why social media and diet culture can lead people astray
• The emotional side of eating, including grief, stress and comfort food
• The gut-brain connection and how probiotics, fibre and variety help
• Why frozen veg and simple swaps can make a big difference
• Fitting healthy eating into real life, routine and budget
• Success stories where balanced nutrition improved energy and well-being

Whether you are recovering from a brain injury or supporting someone who is, this episode offers a down-to-earth, evidence-based look at how food can be a powerful ally in healing and self-care.

For a transcript, follow the link below:

• Episode Transcript

To keep up to date with our podcast, follow us on our social media accounts:

• Twitter
• Facebook
• Instagram

Contact details:

• neurorehabnutrition.co.uk
• tony@neurorehabnutrition.co.uk

Helpful links:

• Food Facts - British Dietetic Association (BDA)

Community Compass app!

Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey.

• Google Play
• Apple App Store

Notice:

Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.